7/5/14 update

Hope everyone had a fun and safe 4th…
I want to start by saying Thank You to all those that supported our 1st Annual No White Flags for Cancer Golf Tournament. It was an amazing experience and tremendous success, all because of each one of you. Click or copy & paste the link below into your browser to view the video from the tournament. http://vimeo.com/99130117
Over the next several weeks, our website will be down due to a redesign. Once we have it back up, we’ll send out a notice to everyone. Until then, please follow us on FaceBook for continued updates, upcoming events, etc.

Update on Tyler…. He’s been doing well with his treatments, with no signs of leukemic cells in his blood or central nervous system. If you haven’t seen him lately, he looks great and has lost much of the weight from the steroids.
Ty has been cleared by his physicians to return to college!! This was a huge boost for Ty. He’s been waiting for this moment for awhile; now he can move forward with his young adult life. What a blessing!!!
Last week, Tyler was accepted to attend Florida Polytechnic University, which is part of the University of South Florida system. What an opportunity; he’ll be studying Information-Assurance & Cyber-Security. We are so excited for him… What an amazing young man with an amazing story; who just keeps putting one foot in front of the other no matter what comes his way.. SO PROUD!

Love to all..


6/3 update

All test have come back normal, no signs of cell changes or Leukemic blast.. Positive thoughts, prayers and love has helped us as a family work through these trying times. Tyler will continue receiving treatment every week for another 26 wks.
Thanks to those who purchased a NVR SURRENDER t-shirt supporting Tyler and others affected by cancer. Remember, we would love to see everyone on June 21st at our 1st Annual Golf tournament for Cancer in Orlando.

Love to all

5/26 Update

Happy Memorial Day! Let us not forget those who have paid the ultimate price defending our country. Thank you to everyone that has served our country past & present.
Tyler has been doing well the past several weeks. He receives chemo once a week, usually on Mondays. Mondays are good because it gives him a few days to recover, so he can do a few things over the weekend.
Tomorrow is another big day for us all… He’ll have another Bone Marrow extraction and test. Tyler mentioned he was nervous going into this one. Please continue to pray and send positive thoughts his way. It’s been a long road for him and he’s extremely anxious to get on with somewhat of a normal life.
We’ll update again once we receive the marrow results.

Love to all!!


5/6 Update

Hello everyone,

Sorry, it’s been a few wks since we sent out an update. Tyler is doing much better than a few wks back. His infection is about gone, counts are back to normal (for the situation) and he started receiving chemo again last week. Overall, he’s been in pretty good sprits. He can’t wait to build up enough energy to get out and do some fishing and cruise around in his Stang. Thank you all for your continued support.

No White Flags for Cancer foundation is having a t-shirt fundraiser. The funds raised will be split 50/50 between helping Tyler and allow the foundation to fill the food pantry at Nemours Children’s Hospital. Please visit https://www.booster.com/nvr-surrender.


4/29 Update

Well yesterday was the first time in 4 wks Tyler received chemo. Depending on how you look at it, that could be good or not. His counts have been suppressed for that long due to infections and the antibiotic. His oncologist wasn’t a fan of deviating from his road map, but his body just wouldn’t recover.. He’s been a true champ through all of this.
Thank you to all our friends and family for your continued support. Love ya all.

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4/22 Update

Tyler went in yesterday for normal labs and an EKG. His EKG came back with abnormal QT. So today his cardiologist suggested that some of his meds and possibly some Chemo’s may need to be altered to improve this condition. Just one battle after another.. What a brave young man! He just keeps putting one foot in front of the other..
He’ll have labs again on Thursday and possible chemo Friday if his counts are in line. Again, will keep everyone posted. Love to all!


4/19 Home

Made it home today. Counts are low (neutropenic), so he’s isolated to his room until Monday. At least he’s home and feeling a little better. Still working on getting rid of the infection. Monday, he’ll have labs and possibly restart chemo since it’s been 2 wks. since his last treatment. His doctor doesn’t want to go much longer… You can deviate from the roadmap for only a short period. Thanks for all the warm msg’s and phone calls.
We’ll send out another update early this coming week.


4/17 Update

Well it’s been a crazy 24 hrs. Tyler was adamant that he be released last night from the hospital. So, with hesitation they released him around 10pm. Early this morning he woke up very sick and tried to tough it out, but he just couldn’t do it. So we just got checked in at Nemours about an hour ago; hope tonight goes well for him. He’s so ready to come home! He hasn’t even opened any birthday gifts because he doesn’t want to truly celebrate his B-Day in the hospital.

4/13 Update

Still hunkered down in the hospital. Started running a slight fever today.. Pain is being controlled. Hopefully tomorrow’s test results give the doctors an idea what meds need to change. The fear is after 3 yrs of being medicated, which one of the antibiotics has the body become immune to and will there be something that’ll work in its place.

Thanks to everyone that sent a birthday msg., it meant a lot to him. Below is a pic of us boys about to have some birthday Apple Pie w/ some Vanilla Ice Cream (Ty’s favorite).


Happy Birthday 4/12

20 yrs ago you came into this world and changed many lives. Since that day, you’ve touch many peoples hearts and minds. You have especially changed my heart and mind over the years! Please continue to be the hard head fighter we’ve all grown to love… I need you… You make my heart beat and my word turn; you’re my best friend! So, keep fighting… HAPPY BIRTHDAY